Nov 3, 2020
Description
After suffering for more than a
decade from a rare autoimmune disease, dermatomyositis (DM), a
progressive muscle weakness disease, Lisa Sniderman, aka Aoede, has
persevered by obsessively turning to creativity to express herself
and as a healing path. An award-winning, quirky, folk-pop
artist, playwright, filmmaker and author, Aoede’s life purpose is
also becoming a light in the darkness and a muse, offering support,
compassion, inspiration, connection, and encouragement to those who
need it most-especially those experiencing transformations:
illness, disability, or unexpected life challenges. Aoede
is a living example that it
is possible to live a life filled with hope, passion, and joy, even
if the shape and substance of our dreams change.
What You Will Hear in This Episode
- Lisa’s personal journey battling and managing
dermatomyositis and its life altering effects as well as the
challenges of going from being completely independent to totally
dependent.
- The
SPOON Theory: Living with a limited number of spoons
- The
importance of finding balance between your passions and self
care.
- Aoede’s discovery of how to use her creativity
to help people process their losses or transformations and the
importance of going through the grieving process.
- Discovering balanced wellness
- Tips
on how to move from surviving to thriving
- 7
stages of grief and 7 stages of thriving
Quotes
- “Creating and creativity enables me to not
focus on being sick and the darkness…...it gives me purpose and
meaning. It reminds me I am not my illness.”
- “My
illness is a continuing journey.”
- “Whatever your self care and needs are, attend
to them. Don’t have guilt over that because sometimes to do
that means that you’re going to be able to be more present and able
to be there for yourself and for others.”
- “I
have to allow myself to grieve”
- “Just
allow yourself to be open to the experience, and whatever is coming
up for you, sit with it, cause that, to me, is what grieving is
about. It’s not linear, it’s a journey, it’s not a one time
event”
Mentioned
A Light in the Darkness
The Grieving Project audio
book
Myositis support and
understanding
Twitter / facebook
@aoedemuse
@aoedemusemusic